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Support Groups
The following is a list useful links that I have compiled. If you wish to be added to this list, please send an email from the contact page with the subject "support group".
The Saint Philomena Support Group offers spiritual and emotional support to Catholic parents of special needs children. Meetings are held on the second Tuesday of the month in the Education Building of Sacred Heart Roman Catholic Church in Pinehurst, NC.
Shwachman-Diamond Syndrome family and friends email Support list:
Neutropenia email Support Group:
LMC-TCS email support group - for support and information for families dealing with LMC-TCS and other forms of tethered spinal cords.
Joseph with his baby bunny, Henrietta.
SDS Faith group-- a spin off of the Shwachmansyndrome group-- low volume email-- daily inspirations sent once a day.
Click to join SDS_Faith